Protecting Data Privacy in Health Services Research

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Executive Summary, Introduction, Privacy and Research, Health Services Research, Benefits of HSR, Risks of Harm from HSR, Background and Policy Context, Project and Scope, Outline of Report, Human Subjects Protection and Health Services Research in Federal Regulations, IRBs and Human Subjects Protection, Previous Studies of IRBs, Human Subjects Protection in HSR, Principles and Practices, Best Practices for Irb Review of Health Services Research Subject to Federal Regulations, Best Practices for Irb or Other Review Board Oversight of Health Services Research not Necessarily Subject to Federal Regulations, Recommendations for Next Steps, References, Acronyms and Abbreviations, Appendixes, A Study Activities, B Institutional Review Boards and Health Services Research Data Privacy, A Workshop summary, Executive Summary, Introduction, Workshop Summary, References, Addendum A - Workshop Speakers, Addendum B - Workshop Participants, C Protecting the Health Services Research Data Minors Ross A. Thompson, D Confidentiality of Health Information: International Comparative Approaches, Bartha Maria Knoppers, E Biographical Sketches